Thallasemia conference recommendations


Thallasemia conference

LAHORE: The 9th National Thallasemia Conference & Workshops was held here at FMH College of Medicine & Dentistry Lahore recently. A large number of thalassaemia patients, parents, doctors and volunteers from all the 46 Thallasemia societies and centers working in the country attended the national conference.

The speakers discussed latest treatment modalities besides prevention of Thalassaemia. Later the house elected Lt. Gen. (R) Moin Ud Din Haider and Dr. Yasmin Raashid as the President and the General Secretary of Thalassaemia Federation of Pakistan. Other elected officials included Dr. Sarfraz Jafri -Vice President, Dr. Nadeem Samad-Finance Secretary, Yasin Khan Joint Secretary, Mr. Mian Attiqu ur Rehman Fund Raiser, M. Iqbal - Public Relation Secretary, Dr. Ihsan Ul Haq -Parent & Patient Representative, TFP, Dr. Jovaria Mannan- Chairperson Medical Advisory Board and Mr. Hussain Jafri, Mr. Musawir Tareen, Dr. Zafar Iqbal, Mr. Waqar Nasir, Dr. Fakhar, Mr. Rehman Ali Sahil, Mr. Zakir Hussain, Brig (R) M. Fayyaz, Miss Rumasa Noor, Younis Hussain, Dr. Haroon Maimon, Dr. M. Usman and Maj Gen (R) Suhaib Ahmed as Executive Committee Members.

During the General Body meeting following recommendations were made:

• Thallasemia medicines and products should be considered orphan drugs
• Government should collaborate and assist Thallasemia societies in creating awareness and in providing treatment, medicines, products and prevention free to all Thallasemia patients
• Government should provide Thallasemia treatment and prevention services at all Tehsil and District levels
• Government should assure that all blood is properly screened so that Hepatitis B & C are not transmitted through blood transfusions
• Pharmaceutical companies reduce the price of Thallasemia medicines and products
• All provincial governments should follow Sindh province and pass Thallasemia screening bills. (PR)

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